I've been putting off writing here, because I had too many unformed ideas competing for air time. Plus, this week I've had meetings every day, a lot more than I usually do. I've also discovered over the years that meetings mess with my ability to process my thoughts into written words. In any case, I'm here now, and determined to get something coherent written before the end of Friday.
Last week I listened to an episode from my favourite podcast: Undeceptions. The topic was close to my heart: Dis/ability. There was lots to chew on, including different theological ideas about what heaven will be like, whether the disabilities that people experience here on earth will have any part of that or not.
As one who has worked as an allied health worker, I was thinking about this topic from well before I encountered disability as a parent. As an Occupational Therapy student we were trained to think about people holistically, to consider their whole lives and probably more than most professions in the field, to think deeply on what someone could do as opposed to what they couldn't do.
And then we had kids and got neurodivergent diagnoses which gave us another perspective on this whole topic, especially as our kids moved into post-school years.
I'm not about to rehash what was covered in this hour-long podcast, but wanted mostly to mention something that particularly jumped out at me. The host, John Dickson, interviewed Kirk Patston, the Director of the Centre for Preaching and Pastoral Ministry and a lecturer in Old Testament and practical theology at Sydney Missionary and Bible College. He's got lived experience as the parent of an adult son with a disability as well as professional experience as a former speech pathologist.
He and his wife were working in four churches when their son, Jerrah, was born. Kirk talked about the mentality of someone in Christian ministry where there is always a feeling that there's more you can do and a sense that you can always do better. This really resonates with me. It's a strange mix of our worth is based on how much we do, yet our faith is about God's grace, which has nothing at all to do with how much we do. They weren't getting much sleep because their son was having seizures and not sleeping and they both ended up having to "live off government payments and people's kindness for a year." It was very different to the church work they had been doing, and this of course meant they thought about who they were, what did God really want from them. See the full transcript at the end of this post.
Kirk said, "It doesn't make economic sense". Indeed, the whole field of disability can make you step back and think about human value. If our value is based only on economic output, then disability really challenges that. So does caregiving of little children and elderly people. (Cross-cultural mission also doesn't make economic sense, but I digress.) Kirk also said, though, that "that's not to say that the Lord's not in it, and that God might actually be doing something deep and important here."
I think this is an important point to think on: that even if it doesn't make sense from an efficiency point of view, it's not the only perspective. God has a different view on our lives and we need to trust him that he's got a purpose in the situations we find ourselves in, even if we don't understand it now.
A portion of the transcript of the podcast:
John Dickson:
How has Jerrah, over the years, helped you think through, maybe not at the highest philosophical and theological level, just approach our topic that I wanna talk to you about of, of disability? Have you found that this experience, this lived experience has actually had a big influence, or did it just simply turn your mind to the topic, as it were?
Kirk Patston:
Oh, no. Big, a big influence. Kind of an undoing of me, really. Yeah. Um, I think I had a framework about Christianity, which I, I knew intellectually I was always had to work against, that, um, what God really wants from me is, you know, lots of service of other people, lots of activity.
A very kind of activist, uh, account of Christianity. So, my wife and I have… We’ve got theological training and have worked in church ministry, and you’re always feeling that there’s more I can do. There’s more people I could talk to about Jesus. There’s m- you know, there’s better pastoral care I could offer, more, you know, there’s how can we grow things?
So you’ve got that kind of story where you’re, you’re productivity based. Sure. Um, and, and but with paradoxically at the same time knowing that the Christian message is actually about God’s grace- Yeah … where, you know, we don’t earn and where we’re actually unable to- Mm-hmm … perform. So it’s, it’s sort of weird.
Like, there’s this clash in it, and oftentimes I would identify and know that clash. But then along comes Jarrah, and, um, he came along in a period in our life when Lisa and I had four churches to look after that were all struggling. Um, but one or two of them in particular were just sort of going through a time of change.
New people were coming. There was this sense of, aha, these churches that were dying are not going to die. God’s going to do something. And then along came Jarrah with these uncontrolled seizures, and, he didn’t sleep. He’d just sleep in 40-minute little snatches. So we just… Our life was so chaotic, we just got to the point we just had to walk away from our ministry roles.
We just lived off government payments and people’s kindness for a year. And, um, so then you think, oh, who am I? You know, who am I as a Christian? Mm. What does God want from me? And you begin to see the dignity of, and the, the wasteful dignity of I’m going to care for one little person with epilepsy, rather than four churches.
Yeah. Um, and it do- doesn’t make economic sense. It’s not efficient. Mm. But that’s not to say that the Lord’s not in it, and that God might be actually doing something deep and important here.
(This is a transcript with this note: Transcripts are generated using a combination of speech recognition software and human transcribers, and may contain errors. Please check the corresponding audio before quoting in print. I've removed some small errors, but I haven't checked the audio before quoting it here.)


